"Individually we are one drop, together we are an ocean”

We cordially invite physicians, clinicians, academic researchers, scientists, genetic counselors, and volunteers to join the consortium and work together to better understand and treat patients with rare genetic diseases

Support us by

  • Helping to build a comprehensive repository of rare genetic diseases and bone marrow failure syndromes
  • Generating awareness of these diseases among physicians, medical students, patients and their families through-
    • Seminars, workshops and webinars
    • Creating family support groups
  • Fund raising: (through philanthropic donations, organizing events etc)
    • To cover the cost of genetic testing for some patients
    • Fund short term high priority Research Projects
  • Volunteering your time and expertise to help further the mission of the consortium

Bringing together clinicians and researchers under one platform to improve clinical therapies and outcomes for the patients.


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